What are the short-term and long-term implications of Cancer on Quality of Life?
Being anxious is common at diagnosis of cancer, during and after its treatment phases 8-10. Palpitation, sweating uneasiness and restlessness are but some examples of the anxiety that can lead to apprehension, worry, poor concentration and psychosomatic disarrays11. Cancer also elicits significant pain for children and adolescents12. It is one of the most distressing symptoms that affect patients’ quality of life13, delays their recovery, generates distress to their families and causes long term morbidity14. Several areas could have an effect on children’s general wellbeing, which encompasses physical, psychological, cognitive, social, and economic domains15. Arslan et al. 16 used a cross-sectional approach to investigate the consequences of chemotherapies and their side effects on quality of life and found a significant impact on HRQoL of children across a range of domains; physical, social, school and emotional.
What is the aim of the present research?
In order to deal with cancer related challenges, promote normative youth development, increase treatment adherence, and escalate rates of successful transition to aftercare and/or adult health care services, we established a group to investigate the QoL and HRQoL for children, teenagers and young adult cancer patients (2-25y) in Qatar. Preliminary data reveals that children with cancer in Qatar show low HRQoL in several QoL domains.
In this study, our QoL group will collaborate with Hospital of SickKids in Canada to implement and evaluate the effectiveness of a self-management online intervention in raising the quality of life and decreasing the levels of anxiety and pain from the diagnosis stage until the end of treatment phases.
The aim of this program of research is to evaluate the “Children and Teens Taking Charge: Managing Cancer HRQoL Online Trial” Internet intervention that has been designed to help children and adolescents with cancer to develop self-management skills, enhance transition readiness, promote social support and improve their health-related quality of life (HRQoL) and decrease their anxiety and pain levels using a sequential phased approach.